145: Ashley’s Story | Childhood Dementia, An Ended Marriage, + Learning to Live in The Present

When Ashley’s daughter Sadie was born, medical complexity took their family by surprise. A hospitalization post-birth eventually led to a life-limiting diagnosis of childhood dementia, and Ashley’s family was turned completely upside down. In this raw and real episode of The Rare Life, Ashley shares what it was like to receive her daughter’s diagnosis, the ways this revelation altered her family, and how she’s found new and fulfilling relationships in her life since then. And while Ashley’s found a new way to look at life, she also shares openly and honestly about her grief and how she’s navigated through her complicated feelings. This episode is so good and so tender. You don’t want to miss it. And a big thank you to MOOG, our sponsor for this episode!   Links: Visit MOOG’s website to see the many ways they support families like ours! Listen to Ep 130: Anticipatory Grief. Listen to Ep 19: The Story of Claire. Listen to Ep 51: Isolation vs. Connection. Follow Ashley on Instagram @savingsadierae! Follow us on Instagram @the_rare_life! Donate to the podcast or Contact me about sponsoring an episode. Fill out our contact form to get a reminder about upcoming discussion meetings and the Skype link to join! Follow the Facebook page. Join the Facebook group Parents of Children with Rare Conditions. Access the transcript on the website here. And if you love this podcast, please leave us a rating or review in your favorite podcast app!