150: Siblings | Listening + Learning from Glass Children w/ Megan Schneider

We talk all the time about our disabled children in this space... But what about their non-disabled siblings? In today's episode of The Rare Life, we're going to hear from them directly: about the good, the hard, the unexpected, and about just how much they love their disabled brothers and sisters. We heard from nearly thirty siblings, from toddlers to teens (and even a few adults!) Megan Schneider, a grown-up with a disabled sibling, also joins me to share her own experience and respond to these tender thoughts from some of the other kiddos in our lives. This episode is so raw, so heart-wrenching, and so sweet. You can’t miss it.  Also, it's the last day of our Family and Friends fundraiser! Don’t forget to promote your own fundraisers one more time (or start one just for today and see how much you can raise!   Links: Join us for The Family + Friends Rare Disease Day Fundraiser and see how you can help The Rare Life continue for years to come! Listen to Ep 142: What If My Child Outlives Me? Listen to Ep 40: Wendy’s Experience. Listen to Ep 47: Siblings with Katie Taylor. Listen to Ep 50: Katherine’s Sibling Experience. Listen to Ep 99: Family Planning. Check out @ourrealrarelife on Instagram! Follow us on Instagram @the_rare_life! Donate to the podcast or Contact me about sponsoring an episode. Fill out our contact form to get a reminder about upcoming discussion meetings and the Skype link to join! Follow the Facebook page. Join the Facebook group Parents of Children with Rare Conditions. Access the transcript on the website here.