165: What We Want Our Child’s Therapists to Know, But Don’t Tell Them w/ Alex Farha

Have you ever wanted to tell your child’s therapist *exactly* how you feel about therapy homework? Or remind them just how many other therapy appointments you have scheduled this week. Or maybe just explain to them that... you want to be mom, not play the role of therapist today. In today’s episode, I’m joined with guest and fellow disability parent Alex Farha to go through all the things that parents from this community wish they could say to their child’s therapists. We cover all kinds of topics, but at the end of the day, I think we mostly just want to remind therapists that our disabled and medically complex kids are children too, and whatever therapy activities they are expected to do should account for that. This episode was so cathartic to record with Alex, and I think every parent who has ever had a child in therapy is going be nodding their head the whole time. Also, huge thank you to our sponsor Permobil for their wide array of mobility devices and their support of this community!   Links: Join The Rare Life newsletter and never miss an update! Fill out the application for our final board seat! Visit the Permobil website to learn more about their mobility products! Listen to Ep 126 on when to scale back therapies. Listen to Ep 4 on how we are NOT our child’s therapist. Connect with Alex on Instagram @al.farha_! Follow us on Instagram @the_rare_life! Donate to the podcast or Contact me about sponsoring an episode. Fill out our contact form to get a reminder about upcoming discussion meetings and the Skype link to join! Follow the Facebook page. Join the Facebook group Parents of Children with Rare Conditions. Access the transcript on the website here. And if you love this podcast, please leave us a rating or review in your favorite podcast app!