168: Stephanie T.’s Story | Undiagnosed Son, a Ballroom + Fully Accepting the Now

Stephanie’s family had big plans before her son Garrett was born. A business idea, a roadmap laid out, and the world felt wide open before them. And then... things changed. Garrett was born with a (still undiagnosed) medical complexity that requires intense, round-the-clock care. Trauma ensued. Tears were shed. And tough decisions were made, as Stephanie to become his full-time caregiver. But even though the big plans for their family had to be adjusted, Stephanie doesn’t spend her time grieving the “what ifs.” In this episode, she shares how she’s accepted the reality that she’s been given, how her family has navigated medical complexity, and how at the end of the day, she was able to embrace her ballroom dreams after all. This episode is equal parts raw, honest, and uplifting. Don’t miss it!   Links: Get tickets to a special screening of The Zebra and The Bear just for The Rare Life listeners! Join The Rare Life newsletter and never miss an update! Fill out our contact form to join upcoming discussion groups! Follow Stephanie on Instagram @truthandbeautyremain! Follow us on Instagram @the_rare_life! Donate to the podcast or Contact me about sponsoring an episode. Follow the Facebook page. Join the Facebook group Parents of Children with Rare Conditions. Access the transcript on the website here. And if you love this podcast, please leave us a rating or review in your favorite podcast app!