169: Crunchy Medical Parenthood w/ Suzi Boubion and Julianna Morasse

Imagine with us: You have a shelf full of tinctures, a book of natural remedies, and plan to use holistic medicine to care for your family as much as possible... and then you have a medically complex child who requires intense medical intervention, specialist appointments, and a whole host of pharmaceuticals. This is where Suzi Boubion and Julianna Morasse found themselves shortly after having their medically complex children, and the experience was just as jarring as it sounds.⠀⠀⠀⠀⠀⠀⠀⠀⠀In Ep 169 of The Rare Life, Suzi and Julianna describe the shock of being self-described “crunchy moms” who found themselves abruptly living a life of pharmacies, hospital visits, and medical procedures, while navigating the harsh divide between those two worlds and reevaluating some of their long-held beliefs around medicine.⠀⠀⠀⠀⠀⠀⠀⠀⠀We also cover what finding community looks like for them now, how they are each working through their trust issues with the medical system, and how they’ve found strength as advocates for their children.⠀⠀⠀⠀⠀⠀⠀⠀⠀This is one episode you cannot miss! Links: Visit the Functional Formularies website to learn how you can get real food blends for your tube fed child! Get tickets to a special screening of The Zebra and The Bear just for The Rare Life listeners! Join The Rare Life newsletter and never miss an update! Fill out our contact form to join upcoming discussion groups! Follow Suzi on Instagram @oliversodyssey1! Follow Julianna on Instagram @howlinghive! Follow us on Instagram @the_rare_life! Donate to the podcast or Contact me about sponsoring an episode. Follow the Facebook page. Join the Facebook group Parents of Children with Rare Conditions. Access the transcript on the website here. And if you love this podcast, please leave us a rating or review in your favorite podcast app!