170 - Amy Mooney - "Flipping the Iceberg" - What if everything you thought about recovery is underwater?

Amy Mooney shares her unique perspective as both an occupational therapist and caregiver to her daughter with ME-CFS, revealing essential insights about rest, recovery, and meaningful approaches to chronic illness management.• 25 years of occupational therapy experience transformed by caring for her daughter with ME-CFS for the past decade• Learning to see "beyond the iceberg" - what practitioners miss when they only observe patients during clinical visits• The concept of "aggressive rest" as an active strategy rather than simply doing nothing• Understanding different forms of exertion: physical, cognitive, emotional, and sensory• How each person has different "buckets" for various types of exertion and unique symptom patterns• The importance of preemptive rest before activities and recuperative rest afterward• Creating personalized support systems that address individual symptoms and priorities• Safely testing boundaries rather than pushing through prescribed exercise protocols• Why prioritizing activities that bring joy and meaning is crucial for quality of life• Being cautious about delayed responses to increased activity - sometimes PEM hits 3 days laterAmy has been working with Bateman Horne Center to provide education and resources to medical providers, helping ensure patients receive appropriate care focused on true rest rather than harmful exercise regimens.Links:Amy's private practice: www.OT4ME.comBateman Horne Center's rehabilitation professional resources and videos: https://batemanhornecenter.org/providers/mecfs/diagnosing-managing/rehab-professionals/Peer-to-peer Facebook group (for therapists only) - PT, OT & SLP Resources for Treating ME/CFS: https://www.facebook.com/share/g/1EEnAJvf6v/Message me! (I can't reply to these messages) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram  Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or [email protected]**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**