198: Ashley’s Story | A Year in the NICU, Impossible Choices + Complex Joy episode artwork

EPISODE · Sep 25, 2025 · 1H 4M

198: Ashley’s Story | A Year in the NICU, Impossible Choices + Complex Joy

from The Rare Life · host Madeline Cheney

From the moment Ashley learned she was carrying twins, her life took a turn she would never have imagined.A diagnosis of twin-to-twin transfusion syndrome set off a chain of events: heart-wrenching decisions for her twin daughters, another complicated pregnancy ending in an emergency C-section at 24 weeks, and more than a year in the NICU with her son. Along the way, she wrestled through overwhelming grief, advocated for her son in a complex medical world, and discovered the ways in which love,light, and loss can coexist.If you’ve ever lived through what felt like a never-ending medical crisis, or wondered if joy could return after devastation, Ashley’s story is for you.Links:Join The Rare Life newsletter and never miss an update!Fill out our contact form to join upcoming discussion groups!Follow us on Instagram @the_rare_life!Connect with Ashley on Instagram @ash.bouch!Donate to the podcast or Contact me about sponsoring an episode.Follow the Facebook page. Join the Facebook group Parents of Children with Rare Conditions.Access the transcript on the website here. And if you love this podcast, please leave usa rating or review in your favorite podcast app! 

Episode metadata supplied by the publisher feed · Published Sep 25, 2025

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198: Ashley’s Story | A Year in the NICU, Impossible Choices + Complex Joy

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