2 The Hard Way: Tales of FSHD featuring Phil Monocle

In this episode I speak with Phil Monocle, my brother in FSHD, about how our condition moves through the body, survival tools, and inspiration medicine.Phil grew up playing cello and bass and working with his hands, mostly with woods and metals, and ultimately worked as a violin maker and restorer until FSH muscular dystrophy forced him to stop. He has spent the ensuing time figuring out "life hacks" that allow him to keep moving and doing, for as long as possible, and in as safe a way as possible.