#201 - Stephanie Johnson

In this episode of The 10 Ninety Podcast Mason sits down with Stephanie Johnson, a mother of six from Arizona navigating two devastating realities at once. In October 2025, she lost her brother Loren to a drug overdose. Weeks later, her four-year-old son Nikolai was diagnosed with Hunter Syndrome — a rare genetic disorder affecting roughly 1 in 1 million male births that causes progressive neurological decline, with most children not surviving past their teenage years. Stephanie talks openly about grief, guilt, the fight to find treatment, and what it means to stay present when the future feels impossible.