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229: Season 14 Kickoff | Our Board Retreat, Summer Recaps + Sneak Peeks episode artwork

EPISODE · Sep 3, 2026 · 25 MIN

229: Season 14 Kickoff | Our Board Retreat, Summer Recaps + Sneak Peeks

from The Rare Life · host Madeline Cheney

Season 14 is here, and this time the focus is on how raising a disabled or medically complex child impacts us as people. This season, we’ll be talking about things like anxiety, PTSD, identity, feeling like your body failed your child, numbing out and dissociation, exercise, and being seen as a “Debbie Downer” when you’re honest about the realities of this life. As always, we’ll also have story episodes woven throughout the season, including a long-overdue story episode with Amanda Griffith-Atkins. We’re also sharing some behind-the-scenes updates in this episode, including how Madeline and Alyssa are splitting hosting and production this season, our first in-person board retreat in Maine, and a little of what we’ve been up to over the summer. Finally, we’re wrapping up this season opener with clips from the first few episodes. Don’t miss it! Links: Access the NICU Survival Guide here or at https://therarelife.org/nicuguide. Listen to Ep 81: Health Anxiety. Listen to Ep 85: Should A Child’s Disability be Part of Their Parent’s Identity? w/ Emily Ladau. Fill out our contact form to join upcoming discussion groups! Join The Rare Life newsletter and never miss an update! Follow us on Instagram @the_rare_life! Donate to the podcast or Contact me about sponsoring an episode.

Episode metadata supplied by the publisher feed · Published Sep 3, 2026

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229: Season 14 Kickoff | Our Board Retreat, Summer Recaps + Sneak Peeks

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