248 - Everyone Holds a Piece w/ FARA CEO, Jen Farmer

In this insightful interview with Jen Farmer, CEO of the Friedreich's Ataxia Research Alliance (FARA), we explore the evolving landscape of rare disease research and the journey towards treatments for Friedreich's ataxia (FA). Jen shares her experiences and challenges as a leader in the field, emphasizing the importance of community involvement and collaboration.Also in this episode:Sean travels to Vegas with a group of 30.Newsworthy: Viral ad challenges stereotypes about Down syndrome: ‘Assume I can drink a margarita’Thank you notes: Jakob in Austria and Kelly at The Venetian.Links and resources:Jen's Previous episodes: DD pt4: Why Sean Baumstark is Banned From Clinical Trials | How a Mom Launched the First Drug Approval in FANewsworthy music courtesy of Zapsplat.com