250 - Thriving with Duchenne - Rare Disease Day with Jett Foundation

Our friends at Jett Foundation invited us into their community once again for a conversation with 5 panelists on Rare Disease Day. We were honored to moderate the discussion with these friends:Race Martinez - Architecture Student, living with DuchenneKris Napper - Graphic Designer/Illustrator, Business Owner, living with SMAChris Schlechty - Software Engineer, Jett Foundation Board of Directors, living with Limb-girdleColin Werth - IT Specialist, International Traveler, living with DuchenneAmanda Becker - Mom to individual living with DuchenneThe conversation covered topics such as adaptive driving, college transitions, building a career, volunteering to enrich the community, and entrepreneurship.  All of this helped highlight the strength and determination within the rare disease community.We hope you are as encouraged by this conversation as we are.Links and Resources:Jett FoundationCamp Promise