278 - Mic Trouble, a Gift Card, and Streaking on a Cruise Ship

This replay of our first-ever Two Disabled Dudes Podcast live broadcast captures all the excitement—and a few mic mishaps—of going live with our audience. Listeners from around the world joined in via chat while we shared personal updates, gave away a $20 Amazon gift card, and welcomed returning guest Effie Parks, host of Once Upon a Gene. Effie reflected on how our show inspired her to start her own podcast and shared moving stories of how her work connects and empowers rare disease families.Together, we dove into the vision for Rare at Sea, our upcoming group cruise in February 2026 celebrating Rare Disease Day. From accessibility perks to the joy of connecting without a strict agenda, we discussed why this trip is as much about friendship and fun as it is about awareness. We wrapped up with gratitude notes, an open invitation for anyone connected to rare disease to join us, and a reminder to catch our next live recording on August 17, 2025.