30+ Years Without a Diagnosis, Until Now | Abbey and Zach Cook

In this episode of My Hero 360, Kerri Fitzgerald speaks with two heroes—first, Abbey Cook, the mother of two sons who were misdiagnosed for years, and second, Zach Cook, one of her sons who was just recently diagnosed with the rare genetic condition cerebrotendinous xanthomatosis (CTX). The Cook family went years without a proper diagnosis, but a new FDA-approved treatment option, coupled with the correct diagnosis, has made a big impact on their life.  My Hero 360 would like to thank the CTX Alliance for their partnership on this interview. Key Highlights: Hear how it took the Cook family over 30 years to get a proper diagnosis of CTX. Listen to Abbey’s recommendations for parents or caregivers on how to advocate for a loved one dealing with a health issue. Be inspired by Zach’s poem that puts into words how it feels to live with CTX. Heed Abbey and Zach’s advice to consider rare diseases during a prolonged health journey. Learn more about the CTX Alliance:  https://ctxalliance.org/  About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world. Support My Hero 360: https://myhero360.com/  https://www.instagram.com/myhero.360/   https://www.tiktok.com/@myhero.360   Listen To Our Heroes’ Stories: Spotify: https://open.spotify.com/show/1LnJ9ce28OkweYcopCZx2L?si=ae174fd84ef44334 Amazon Music: https://music.amazon.com/podcasts/aa426e78-fb79-4978-8851-d5aab25cf951/my-hero-360  Subscribe to this channel for more inspirational stories.