303. How will the "Big, Beautiful Bill" affect my loved one with Down syndrome?

In this current political climate, one of our goals is to keep you all up to date on the legislature that impacts our community. So friends, its time to talk about the “Big, Beautiful Bill” and how it will affect individuals with Down syndrome. We are SO grateful for an incredible guest to help us out. Sean Feely is the new Director of Advocacy and Policy at the National Down Syndrome Society and he’s here today to answer all of our questions..The basic questions: What exactly is the “Big, Beautiful Bill”? What exactly is medicaid?The complicated questions: Are home and community-funded services in danger? What are the new rules around work requirements and retroactive coverage?The scary questions: Will my loved one with DS lose their coverage? We’re also asking the productive questions.. What can we do now? What sources can we trust? Grab a pen and get ready to take some notes! --SHOW NOTESSign up for the National Down Syndrome Society’s newsletter HERE.Listen to our episode with Charlotte Woodward about organ transplant discrimination HERE.SPONSORS National Down Syndrome SocietyiCanShine ProgramsDown for GreensRods HeroesJOIN THE LUCKY CREWJoin us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!