3325: Closing the Survival Gap: Understanding Sickle Cell Disease in South Sudan

Sickle Cell Disease affects millions of people worldwide, yet awareness and understanding of the condition remain low. As South Sudan prepares to commemorate World Sickle Cell Day on Saturday, July 4, at Al-Sabbah Children's Hospital, this edition explores the challenges faced by people living with the condition and the efforts being made to improve care and support. Held under the theme "Closing the Survival Gap: Equity in Sickle Cell Disease," the discussion looks at the prevalence of sickle cell disease in South Sudan, the warning signs families should watch for, and the importance of early diagnosis, treatment, and community awareness.Joining us are Dr Sarra Amum of Al-Sabbah Children's Hospital and Dr Moses Mutebi of the World Health Organization, who share insights into the condition, ongoing challenges, and practical steps to improve outcomes and save lives for those affected.