36: Rare Disease Day 2021, The Parent-Perspective

In this special collaborative Rare Disease Day episode, twelve parents come together to share a little about their children with rare conditions. This is a tribute to all children with rare diseases everywhere, and their parents who love them more than life. These twelve moms tell us a bit about their child’s diagnosis, what it was like to find out about it, and what they want the world to know about their child. And its gold. In their 2-4 minute segments, they capture a variety of perspectives and unique situations, but they all have one thing in common; they love their children profoundly. Links: Join the FB group Parents of Children with Rare Conditions: https://www.facebook.com/groups/parentsofrare/permalink/419788272495139/?comment_id=419995795807720&reply_comment_id=420670799073553 FreeArm Tube Feeding Assistant: https://freearmcare.com/ Instagram accounts: Madeline Cheney, host: @the_rare_life Eliza +Lorenza: @chargeonwardandupwards Harper + Morgan: @hustleheartsandhospitals Beau + Kim: @beaus.journey William + Bethany: @joyfulblondie Isaac + Brianna: @brianna.alcox Freeman + Misti: @freearm.tube.feeding.assistant Jade + Phylicia: @shortandsweet.pnw Mauve + Morgan: @mauvevalentina