37: The Story of Lily

Not every twin has a living sibling—and Lily is an example of this tragic phenomenon. Her sister known as Autumn passed away at 24-weeks gestation, and she was born a few days later. In this episode, mom Jess shares the pain of losing a child and of the struggles that Lily has had because of her premature birth. Lily has a tracheostomy, is G-tube fed, and has damaged lungs due to her intubation during her 256-day NICU stay as she fought for her life. Lily almost died several times during her stay, but one time in particular has really stuck with her. Jess also opens up about the guilt she holds because of the clotting disorders which ultimately led to A’s death and Lily’s prematurity. Links: Follow Jess here: https://www.instagram.com/lilyslittlelungs/ Follow me here: https://www.instagram.com/the_rare_life/ Answer this month’s question here: https://therarelifepodcast.com/ Still Apart of Us, a Podcast about Stillbirth and Infant Loss: https://stillapartofus.com/