#437 - 🔵 [PAS 2026] - How Can Families Transform Their Grief Into Research That Saves Other Babies? (ft. Jennifer Canvasser)

Send us Fan MailJennifer Canvasser, founder of the NEC Society and mother of Micah, a 27-weeker who passed away from necrotizing enterocolitis (NEC) in 2014, shares what is new at the world's largest organization dedicated to NEC. She discusses the upcoming NEC Family Summit — the first of its kind globally — taking place in Davis, California this September, and explains why bringing families together as active research partners is not just about healing but about advancing the science. She also addresses how clinicians can better empower NICU families with information before a diagnosis is ever made, and highlights the free evidence-based resources the NEC Society has developed for units and families navigating this devastating disease.Support the showAs always, feel free to send us questions, comments, or suggestions to our email: [email protected]. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below.Enjoy!