5: A List of Diagnoses

Any diagnosis received for your child can be completely overwhelming and heartbreaking. In this solo episode, Madeline shares her experience learning about each birth defect her son has because of his rare genetic syndrome. She also talks about the minimizing effects of spouting off lists of diagnoses, the crippling weight each new diagnosis brought, as well as the triumph and personal evolution she has seen in herself as a result. Her son’s “list” includes: Dwarfism, cervical spine instability, no nasal bone, low muscle-tone, hearing loss, and vision loss. Head to my website for the transcript, comments, question of the month, and more. https://therarelifepodcast.com/show-notes/ep-5-list-diagnoses-solo-episode