EPISODE · Jun 14, 2024 · 33 MIN
50 Years of Supporting the TSC Community, feat. TSC Alliance President and CEO Kari Rosbeck
from Wait, How Do You Spell That? A Rare Disease Podcast · host Patient Worthy
In this episode of the podcast we sit down with Kari Rosbeck, the president and CEO of the TSC Alliance. That’s a nonprofit dedicated to supporting people living with tuberous sclerosis complex and also driving research into promising treatment, among many other things. The TSC Alliance is also celebrating its 50th anniversary this year! Connect with the TSC Alliance: Website - Facebook - Instagram - YouTube - TikTok - LinkedIn - Threads - Inspire Editor's Note: Chronic conditions and rare diseases don’t discriminate. Patient Worthy and our partners are interested in amplifying the voices of those from all identities and backgrounds. If you have a story to share, learn more about how your voice can help spread awareness and inspire individuals from all walks of life here: https://shorturl.at/sPV02
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50 Years of Supporting the TSC Community, feat. TSC Alliance President and CEO Kari Rosbeck
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