57: The Story of Evely

Evely was born without eyes, a rare condition called anophthalmia. When Tameka and her husband brought Evely home from the hospital, they thought blindness would be their one hurdle to navigate. They quickly learned this would not be the case; over the past five years of her life, she has been accumulating diagnosis after diagnosis of things like microcephaly and CHD. And although she is far from lacking in the medical diagnosis department, she is considered undiagnosed because she has no genetic syndrome to link it all together and give them an idea of what to look out for to keep her safe and healthy. In this episode, Tameka shares what that has been like, as well as the ways that she is perfectly suited to be Evely’s mother, and the huge impact the pandemic has had on her mental health. Related episodes: (you might also be interested in:) Episode 5: A List of Diagnoses Links: Follow Tameka on Instagram @thediazgirls. Follow Madeline on Instagram @the_rare_life. Check out podcast merch. Find photos of Tameka’s family on the website.