62 - A Mother’s Mission: Camille Fortunato on Advocacy, Hope, And Williams Syndrome

A Mother’s Intuition Through The UnknownWhen Camille Fortunato’s son Anthony was diagnosed with Williams syndrome at just two years old, her world changed forever. What began as a mother’s quiet feeling that something wasn’t right became a journey through complex medical challenges and frightening cardiac episodes. Camille shares the moment she realized she could physically feel Anthony’s heart racing at a dangerous speed, which led her to call 911 and uncover severe tachycardia.Turning Grief Into Purpose And AdvocacyAs Camille learned more about the cardiovascular risks tied to Williams syndrome, including sudden cardiac arrest and anesthesia complications, she discovered how little research and guidance existed for families. Rather than staying in fear, she transformed that pain into action by launching the Anthony Filippozzo Grant for Williams Syndrome Research and Advancement (AGF), helping fund critical research. She also shares how her love expanded from one child to a whole community of families.Hope, Healing, And The FutureCamille also discusses research breakthroughs offering hope, including studies focused on cardiovascular disease and arrhythmias in Williams syndrome. This conversation is a powerful reminder that love in action can change lives.Connect with Camille Fortunato on Instagram Learn More About AGF and Journey for Change or DonateAttend the Night of Love, Celebration of Life Gala for Williams syndrome, November 14, 2026, Brooklyn, NY Dr. Mark Levin Speaks on Williams syndrome and Research SupportChapters00:00 Introduction to Williams Syndrome Advocacy02:59 The Journey of Diagnosis05:50 Understanding Williams Syndrome08:54 Navigating Medical Challenges11:51 Creating Change Through Advocacy14:47 The Anthony Filippozzo Grant17:58 Upcoming Events and Community Engagement20:49 Personal Growth and Transformation23:45 Hope for the Future26:47 The Power of Awareness29:45 Dreaming of a Therapeutic Future32:44 Conclusion and Call to ActionLet’s chat! [email protected] Join the Innersense™ Communityhttps://innersensebeauty.com/pages/newsletter-sign-up Let’s Stay Connectedhttps://www.instagram.com/joannestarkman https://www.instagram.com/innersenseorganicbeauty/ https://www.instagram.com/innersensepro/ https://www.facebook.com/InnersenseOrganic/ https://www.youtube.com/c/InnersenseOrganicBeauty Clean hair care & body productsUse code JOANNE15 to save 15% on first purchases at https://innersensebeauty.com/Want to elevate your salon? (New Pro Clean Color Line)https://innersensebeauty.com/pages/salonshttps://innersensebeauty.com/pages/education