68. Kevin - Zellwegerspektrumsjukdom

Kevin föddes som en frisk pojke men när han var lite mer än ett år fick han diagnosen partiell triosomi 18p. Det gjorde att han hade dålig balans och var omkring två år efter i utvecklingen. Men han kunde gå, leka och prata som alla andra barn. Vid fem års ålder fick han vattkopporna, och i samband med det bröt sjukdomen Zellweger spektrum ut i hans kropp, där det tidigare legat latent.  Det är en sjukdom som bryter ner kroppen. Kevin levde med sjukdomen till han blev 10 år gammal. Det här avsnittet spelades in tillsammans med mamma Maria på Kevins dödsdag, 7 år efter att han dog. Maria berättar bland annat om hur det är att se sitt barn tyna bort och vara instängd i sin egen kropp.  Hosted on Acast. See acast.com/privacy for more information.

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Kevin föddes som en frisk pojke men när han var lite mer än ett år fick han diagnosen partiell triosomi 18p. Det gjorde att han hade dålig balans och var omkring två år efter i utvecklingen. Men han kunde gå, leka och prata som alla andra barn. Vid fem års ålder fick han vattkopporna, och i samband med det bröt sjukdomen Zellweger spektrum ut i hans kropp, där det tidigare legat latent. Det är en sjukdom som bryter ner kroppen. Kevin levde med sjukdomen till han blev 10 år gammal. Det här avsnittet spelades in tillsammans med mamma Maria på Kevins dödsdag, 7 år efter att han dog. Maria berättar bland annat om hur det är att se sitt barn tyna bort och vara instängd i sin egen kropp. Hosted on Acast. See acast.com/privacy for more information.

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