#84: Scholar Rock Updates and Community Highlights

In episode 80, host Kevin Schaefer talks with fellow SMA News Today contributors Michael Morale and DeAnn Runge. They discuss some topics from the 2021 virtual Cure SMA conference and general news updates. The team also talks about restrictions being lifted across the U.S. and the impact of this on the SMA community. Finally, they highlight some recent columns from our main website. ================================Links to news stories and forum topics: - Apitegromab Put on FDA’s Fast Track https://smanewstoday.com/news-posts/2021/05/26/muscle-directed-therapy-apitegromab-put-on-fda-fast-track/ - SMA Added to North Carolina’s Newborn Screening Programhttps://smanewstoday.com/news-posts/2021/06/09/sma-added-north-carolina-newborn-screening-program/ - Discussion on the film "Sound of Metal"https://smanewstoday.com/forums/forums/topic/have-you-watched-sound-of-metal/ ================================Links to columns:- ”Embracing the Growing Pains of New Wheels” by Katie Napiwockihttps://smanewstoday.com/columns/2021/06/03/new-power-wheelchair-embracing-growing-pains/ - ”I’m Taking My Time Returning to Normal” by Brianna Albershttps://smanewstoday.com/columns/2021/06/07/taking-my-time-returning-normal/ - ”I Don’t Want a World Without SMA. Here’s Why.’” by Sherry Tohhttps://smanewstoday.com/columns/2021/06/09/gene-editing-world-without-sma/ ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums ================================For the most up-to-date information regarding SMA, please visit http://www.smanewstoday.com