86: Karley’s Story | Two Rare Syndromes, Playing the What-If Game, and Appointments on The Daily

With more than 20 therapists and doctors for her two daughters, Karley spends almost every day at appointments with her two daughters. Her three-year-old Nora has two rare syndromes which come along with many sub-diagnoses including hydrocephalus. In this episode, Karley shares what it was like to receive a prenatal diagnosis and to play the waiting game until birth. She also shares the incredible experience of seeing her baby smile and open her eyes for the first time after a life-saving shunt was placed. We also dig into the dynamics of almost-daily appointments for her family. Links: Follow Karley on Instagram. Follow me on Instagram. Check out photos of Karley + fam on the website. Check out our appointment day merch.