93: Chelsea’s Story | Airway Issues, a Dirty Baby, and Making Scary Medical Decisions

When her 6-year-old son Jace was born, they quickly recognized how difficult it was for him to breathe. A NICU stay, rare diagnosis, several intense surgeries, and 4 years later, they welcomed their second son Emmerson to the family. Once again, they were facing difficulty breathing, a NICU stay, and surgeries all caused by the same rare condition their older son has. In this episode, Chelsea tells these stories and share how hard it is to make big medical decisions for her children because, so little is known about the rare conditions they have. We also discuss how blindsided they were when their second was born with similar issues, and the way that emergent medical situations with her sons affect her. Links: Follow Chelsea on Instagram @thiselegantlife. Follow The Rare Life on Instagram @the_rare_life. Check out adorable photos of Chelsea + fam! A huge thank you to our sponsor Moog Medical. Access Moog’s 24/7 live support for current users of their products like the Infinity Pump.