93. Jack - Myofibrillär myopati

Lillebror Jack kom till världen efter en snabb förlossning. Tidigt märktes det att Jack inte mådde bra, men man visste inte hur allvarligt det var. Efter en lång tid på sjukhuset fick familjen veta att han led av en ovanlig och mycket allvarlig muskelsjukdom, Myofibrillärmyopati. Dagen efter att familjen fick diagnosbeskedet, som även var dagen innan Jacks 6-månadersdag, tog han sitt sista andetag. I detta avsnitt berättar mamma Vanessa om hur det var att leva med ovisshet, oro och massvis med kärlek till deras älskade lilleman. Hosted on Acast. See acast.com/privacy for more information.

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93. Jack - Myofibrillär myopati

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