A day in the life of patient advocate, Emily Ullrich

Emily Ullrich is a former professor of Communication Arts and Founder of Nairobi Film Institute, a nonprofit organization she created and where she taught filmmaking to college aged youth in Nairobi, Kenya for free. She was sick for many years before she was diagnosed with Interstitial Cystitis, Endometriosis, and Complex Regional Pain Syndrome in 2015, and Ehlers Danlos Syndrome in 2019, and has had to adapt her lifestyle according to her medical issues. According to a study published in 2019, roughly 70% of patients diagnosed with Ehlers Danlos are women. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6858200/#:~:text=We%20found%206021%20individuals%20(men,a%20practice%20of%205000%20patients. Diagnostic criteria for the disease can be found at the following link: https://www.ehlers-danlos.com/wp-content/uploads/2017/05/hEDS-Dx-Criteria-checklist-1.pdf #interstitial #cystitis #endometriosis #CRPS #Ehlers #Danlos