A Disease Ignored and the Woman Who Wouldn’t Be

In this episode, Syreeta Wright, author, patient advocate, and true warrior, shares what it’s like to live with sickle cell. From the excruciating crises, losing the ability to walk, fighting to avoid donor blood, and the medical trauma incurred as a child. She speaks plainly about feeling violated when her choices were overridden, and how that experience stillaffects her life. Syreeta explains why sickle cell is not a “Black disease,” how that harmful label helped justify neglect, and why research and resources are still far behind where they should be. She also shows how patient blood management and bloodless medicine became her path; building her own blood, using alternatives, and becoming an exceptionally informed patient who refuses to accept “standard care” without questions. Syreeta creates a children’s book series to help kids see themselves as warriors, not victims. If you’re a patient, parent, grandparent, clinician, or anyone who has ever felt ignored by the medical system, this conversation will challenge, educate, and inspire you to advocate fiercely for your own body.  🔗 Check out Syreeta’schannel and her “World Warrior” songs here:https://www.youtube.com/@WelcomeToTheWorldWarrior Let's Talk PBM Website: https://letstalkpbm.com/Music: Iron and Grace – Music provided by SUNO AI No Copyright.Bent but Unbroken-Music by Syreeta Wright AI-generated. No Copyright