A Mother Navigating the Same Rare Condition as her Children | Stacey and Dean

In this episode, Kerri Fitzgerald speaks with Dean Salmon and Stacey Carpenter-Salmon, parents to two children who were diagnosed with a rare genetic condition called Alagille syndrome. Stacey later found out that she had Alagille syndrome, as well as some extended family members. Dean and Stacey give advice for other parents and families helping a loved one through a health journey and talk about how impactful it was to find a community of families who could understand this condition first-hand. Dean and Stacey offer important advice to advocate for your loved one and to take time to relish the simple moments with family. Key Highlights: Hear how Dean and Stacey came to learn that their children had Alagille syndrome. Learn about how the condition affects Stacey and her two children in very different ways. Hear about how Dean and Stacey found a community in the Alagille Syndrome Alliance, connecting with others who could truly understand how their lives have been impacted. Be inspired by Dean and Stacey's recommendation to focus on the important people in life rather than “the stuff.”  Learn more about the Cholestatic Liver Disease Summit:  www.liverdiseasesummit.org  Learn more about the Alagille Syndrome Alliance: https://alagille.org/  About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world.  Support My Hero 360: https://myhero360.com/  https://www.instagram.com/myhero.360/   https://www.tiktok.com/@myhero.360   Listen to Our Heroes’ Stories: Spotify: https://open.spotify.com/show/1LnJ9ce28OkweYcopCZx2L?si=ae174fd84ef44334 Amazon Music: https://music.amazon.com/podcasts/aa426e78-fb79-4978-8851-d5aab25cf951/my-hero-360  Subscribe to this channel for more inspirational stories.