“A Mother’s Voice (Part 1): A Rare Disease Journey and the Power of Advocacy”

In this heartfelt episode of So Let’s Be Friends, Charlotte sits down with Kasey Walsh to begin a powerful conversation about her journey as a mother raising her daughter, Robbie Edwards, who lives with a rare disease.While Robbie was not part of the interview, she is at the center of this story and spoken of with deep love.In Part 1, Kasey shares the early stages of their journey — noticing differences, searching for answers, and navigating the uncertainty that so many families face in the beginning. She opens up about the emotional and practical realities of becoming both a parent and a caregiver, and what it takes to advocate for your child when the path is unclear.This episode offers connection, understanding, and hope for families who are just beginning or still searching for answers.⸻💛 Charlotte’s Quote“The beginning of the journey can feel unknown, but you don’t have to walk it alone.” 💛⸻✨ What You’ll Learn in This Episode👩‍👧 The early journey of raising a child with a rare disease🔍 What it’s like searching for answers and a diagnosis🫶 The emotional reality of becoming a caregiver💬 How advocacy begins within the family❤️ Encouragement for families in the early stages⸻🌐 Now streaming on Spotify, Apple Podcasts, Amazon Music, Audible, and YouTubeFor more about inclusion and our mission, visitwww.merrillbudz.org🎵 (Music written and performed by Kalicia Merrill)