A Rare Diagnosis That Saved His Life: Manuel's Story of Loss, Survival, and a Second Chance

Manuel Romo lost his twin brother, sister, and mother to a genetic condition no one knew they had. Years later, a new diagnosis and lifesaving heart surgery revealed the true cause—and gave him a future. Manuel joins specialists from The University of Kansas Health System to discuss Loeys-Dietz syndrome, monitoring hidden heart risks, and the importance of speaking up, getting checked, and listening to the people who love you.