A Season of Giving; Celebrating the Patient Advocate

Tune in to hear Havanna Lowe talk about her role as a patient advocate in the HD/JHD community. Havanna, who is 17, helps care for her aunt and her cousins while also attending school and working. She's a force to be reckoned with as she advocates for the HD Parity Act and sits on the board of the National Youth Alliance (NYA) at HDSA. In today's interview, Havanna shares what it's like to watch her family live with and pass away from HD and speaks passionately about the importance of HD youth programs and advocating for the HD Parity Act.