A Seat at the Table: How Patients Are Transforming Parkinson's Research

What does it mean to ensure that patient voices shape research, healthcare, and the future of Parkinson's care?In this episode of The Bridge: Bring Your Health, Your Voice, Esther Labib-Kiyarash, a healthcare administrator, Parkinson's advocate, social media creator, Patients Professor, and person living with young-onset Parkinson's disease, sits down with us to talk about her journey. After her diagnosis in 2023, Esther transformed her experience into a mission to help others by raising awareness, connecting with the Parkinson's community, and advocating for greater patient involvement in research. Together, Esther discusses the importance of the patient-centered movement, the powerful message of "Nothing About Us Without Us," and why people with lived experience must have a seat at the table when healthcare decisions and research priorities are being shaped. Whether you're living with Parkinson's, supporting a loved one, or interested in patient-centered research, this conversation offers valuable insights into the power of advocacy, community, and partnership.This video is part of the PEACE-PD (Palliative Care To Improve Quality of Life for People With Parkinson's Disease) initiative, which seeks to increase awareness and use of PCORI-funded research on palliative care for Parkinson's disease. Through patient and care partner stories, PEACE-PD helps people with Parkinson's, care partners, and clinicians better understand the many dimensions of quality of life, including emotional, social, and spiritual well-being.To learn more about Esther Labib-Kirarash follow her on Instagram @shakingingmyboots1, Facebook @Shakinginmyboots Esther, LinkedIn @Esther Labib-Kirarash, and on YouTube ⁨ @estherlabib-kiyarash3999  Spotify currently does not support transcript uploads for this podcast; to view an ADA‑compliant version of this episode and access the full transcript, please visit our YouTube channel viathe link in the description. https://youtu.be/OcaCNipt7_w Visithttps://podcasters.spotify.com/pod/show/the-patients-program to stay updated on both past and upcoming episodes.To watch this episode and more, visit our YouTube channel ⁠https://www.youtube.com/playlist?list=PLf5TFMW2PWhKdIEaP2F9xN213vrkTrv9_⁠Subscribe to our YouTube Channel https://bit.ly/SubscribetoourYouTubeChannelhttps://linktr.ee/thepatientsprogram