🦋🦋 ADRIÁN HABLA DEL TRATAMIENTO QUE PUEDE CAMBIARLO T...

What this episode covers

Hoy hemos vivido un programa muy especial. Hemos hablado con Virginia, madre de Adrián, una persona que padece piel de mariposa, sobre lo que supondría para él la llegada del nuevo medicamento Vyjuvek.Se trata de la primera terapia génica tópica aprobada por la FDA y la EMA para tratar la epidermólisis bullosa distrófica, una enfermedad rara conocida como piel de mariposa. Este tratamiento es capaz de cicatrizar heridas crónicas al estimular la producción de colágeno.Aunque Vyjuvek ya se utiliza en otros países europeos, su acceso en España sigue en proceso de negociación, tal y como informa la Asociación DEBRA Piel de Mariposa.Por eso, desde este programa nos unimos al llamamiento para que este medicamento llegue cuanto antes y pueda aplicarse de manera inmediata a quienes lo necesitan.

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This episode is 31 minutes long.

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This episode was published on February 5, 2026.

What is this episode about?

Hoy hemos vivido un programa muy especial. Hemos hablado con Virginia, madre de Adrián, una persona que padece piel de mariposa, sobre lo que supondría para él la llegada del nuevo medicamento Vyjuvek.Se trata de la primera terapia génica tópica...

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