EPISODE · Mar 24, 2020 · 24 MIN
Adulthood is hard! Ft. Anna from Our Odyssey (Live Recording)
from Wait, How Do You Spell That? A Rare Disease Podcast · host waithowdoyouspellthatraredisease
Heads up- this was recorded on site at the NIH and the sound quality isn't great. We're sorry! We're learning! Rebekah and Ilana sit down with Anna Laurent from Our Odyssey, a new nonprofit that provides support to young adults living with rare and chronic illnesses. We talk about Alagille syndrome (ALGS), the perils of young adulthood (especially when managing a rare disease), and the importance of being able to talk with people who get it. You can learn more about Our Odyssey at https://ourodyssey.org/ and on social media @_OurOdyssey_.
What this episode covers
Heads up- this was recorded on site at the NIH and the sound quality isn't great. We're sorry! We're learning! Rebekah and Ilana sit down with Anna Laurent from Our Odyssey, a new nonprofit that provides support to young adults living with rare and chronic illnesses. We talk about Alagille syndrome (ALGS), the perils of young adulthood (especially when managing a rare disease), and the importance of being able to talk with people who get it. You can learn more about Our Odyssey at https://ourodyssey.org/ and on social media @_OurOdyssey_.
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Adulthood is hard! Ft. Anna from Our Odyssey (Live Recording)
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