Adults & Ageing with Fragile X syndrome: national study (Dr Mary-Ann O’Donovan PhD)

Announcing the first Australian study of adults living with Fragile X syndrome. From early 2024, our collaboration with Centre for Disability Studies (at University of Sydney) will:* Explore the need for and effectiveness of supports for the ADULTS, particularly those in residential care / group home settings* Explore the need for and effective supports for CARERS of the adults living at home, eg supports for future care planning and transition in later life* Produce best practice information resources and care strategies for the disability and aged care workforce* Generate recommendations and advocate for health policy and practice improvements.From our FX Research Roundup webinar 13 July 2023.