Aging with Hemophilia. A Lifetime of Hope. episode artwork

EPISODE · Aug 25, 2026 · 1H 54M

Aging with Hemophilia. A Lifetime of Hope.

from Hope Charities · host Jonathan James

They told Martin Addie he probably wouldn't live past his teenage years. Today, after more than six decades of living with severe hemophilia, he's sharing the lessons, struggles, and hope that shaped his journey.In this powerful conversation, Martin reflects on what it was like growing up before home treatment, prophylaxis, and many of the therapies people rely on today. From painful joint bleeds and long hospital stays to navigating insurance barriers, advocating for patients, and finding purpose through helping others, Martin offers a perspective that spans generations.Martin's story is both a history lesson and a message of hope for the future.If you or someone you love is affected by a bleeding disorder, this is a conversation you won't want to miss.🎧 Hit play, share with a friend, and don’t forget to follow! Every listen helps us get these conversations to more people who need them.Special thanks to Genentech for sponsoring this episode of the Hope Unmuted Podcast!Hope Charities is a national nonprofit focused on helping people living with rare and chronic illnesses thrive. Our programs specialize in helping people with genetic bleeding disorders and #hemophilia navigate the challenges of invisible disease by providing emotional, educational, and tangible support. To learn more about our programs, visit our website www.hope-charities.org. Support the show

Episode metadata supplied by the publisher feed · Published Aug 25, 2026

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They told Martin Addie he probably wouldn't live past his teenage years. Today, after more than six decades of living with severe hemophilia, he's sharing the lessons, struggles, and hope that shaped his journey. In this powerful conversation, Martin reflects on what it was like growing up before home treatment, prophylaxis, and many of the therapies people rely on today. From painful joint bleeds and long hospital stays to navigating insurance barriers, advocating for patients, and finding p...

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Aging with Hemophilia. A Lifetime of Hope.

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