ALS - To The Moon And Back Episode 12

Send us Fan MailNew Episode: ALS to the Moon and Back – Episode 12Ohhh my… this one’s a bit of a ride.Portia and I kick things off completely off track (as usual), wander through grief, a bit of politics, a few strong opinions, some questionable humour… and then eventually remember we’re meant to be talking about ALS 😅We get properly stuck into what I’m calling the “why we can’t” attitude — especially in healthcare. You know the one… where the answer’s no before anyone’s even had a crack at finding a yes.And I’ll be honest, I think I’ve hit my limit with it.When your time suddenly feels very real and very precious, being mucked around, brushed off, or told something can’t be done — it lands a bit differently.There’s also a bit of a rant (fair warning) about being stood up for appointments — twice 🙄 — driving all over the place for things that don’t happen, and that general feeling of “you’ve got to be kidding me.”Plus a classic moment in a mobility shop where everyone’s trying to help… but no one’s actually listening. I may or may not have lost my patience over socks. It happens.Portia, as always, brings the laughs, a bit of perspective, and the occasional “pull your head in” moment — which, to be fair, is sometimes needed.But… it’s not all doom and gloom.There’s actually some really good news in here.I’ve been accepted into a clinical trial that’s looking at treating what’s actually going on in the body — not just managing symptoms. And that feels pretty bloody significant. We chat about what that means, what’s coming next, and that weird mix of hope and disbelief when something positive actually happens.Anyway… it’s a bit messy, a bit funny, a bit raw — very us.Have a listen ❤️Support the showThank you for listening to ALS - To the Moon and Back. If this episode resonated, please share it with someone who might need it. You can follow, subscribe, and stay connected as we continue exploring life, friendship, ALS, treatments, hope, and all the messy, meaningful bits in between. Take care of yourselves — and each other — and we’ll see you next episode.