ALS - To The Moon and Back — Episode 14

Send us Fan MailThis one starts exactly where you’d expect us to begin… microphones, crockery, and a bit of light chaos before we even get to ALS 😄 From there, we head straight into my trip to Uluru — which, honestly, turned into something far more meaningful than I expected. There’s airport moments (including a very honest rant about accessible toilets), unexpected kindness from strangers that absolutely undoes me, and a Qantas flight attendant who may or may not now be part of our extended podcast family. Also, turns out if you casually mention ALS mid-flight, you might end up with champagne and a personal concierge experience… not complaining. But the heart of this episode is what happened out at Uluru. The walk around the base, the “brain” formation, and a meditation that landed at exactly the right time — all of it coming together in this strange, powerful way. There’s something about that place that’s hard to explain, but you feel it. I talk about “leaving the bags behind” — the stuff you carry that you don’t need anymore — and having a moment to just sit in gratitude that I was even there, doing it. It’s a bit woo-woo, a bit grounded, and very real all at once. We also get into the bigger stuff — the reality of ALS in Australia, the gaps in support depending on your age, and how wildly unfair that can be. There’s a raw conversation around choice, dignity, and what the end of life can look like with this disease. But in true form, it’s not all heavy — there’s humour, honesty, and that constant thread of “keep making plans” running through it. Because at the end of the day, that’s what this is about — living, even when things are hard.Support the showThank you for listening to ALS - To the Moon and Back. If this episode resonated, please share it with someone who might need it. You can follow, subscribe, and stay connected as we continue exploring life, friendship, ALS, treatments, hope, and all the messy, meaningful bits in between. Take care of yourselves — and each other — and we’ll see you next episode.