Altering the Perception of Caregivers and Dementia with Dr. Fayron Epps

When Dr. Fayron Epps launched the Altar program, she was told repeatedly that no one would fund research connecting faith and dementia care in the Black community. Fast forward to today, and her groundbreaking initiative has expanded to 23 states, 112 faith communities, and 14 Christian denominations—with millions in funding from government agencies, corporate sponsors, and foundations.What makes this program revolutionary is its dual approach: utilizing the "altar" of the church while "altering" perceptions about dementia in Black communities. By training faith leaders to support caregivers over a committed two-year partnership, Alter creates sustainable support systems where judgment is replaced with understanding and practical assistance.During our conversation at what I insisted on calling the "summit convention" , Dr. Epps revealed how her own experience of not wearing stockings to church and feeling judged informed her passion for creating more inclusive faith spaces. She shared powerful stories of pastors who initially seemed hesitant but eventually became champions for caregivers in their congregations.Most compelling was learning about Altar's newest focus on youth caregivers—teenagers who silently shoulder adult responsibilities without recognition or emotional support. For caregivers feeling isolated or judged within their faith communities, Dr. Epps offers a vision of what could be—churches that recognize your struggle, make space for your loved one's changing behaviors, and provide genuine support rather than mere platitudes. Want to learn more about bringing the Altar program to your community? Visit their website at alterdementia.com. Host: J Smiles ComedyProducer: Mia HallEditor: Annelise UdoyeSupport the show"Alzheimer's is heavy but we ain't gotta be!"IG: https://www.instagram.com/parentingupFB: https://www.facebook.com/parentingupYT: https://www.youtube.com/@parentingupTEXT  'PODCAST"  to  +1 404 737 1449  - to give J topic ideas, feedback, say hi!Be sure to leave us a review!