Amy Evans (Nemaline Rod Muscular Myopathy)|#115

In this episode of ListenABLE, host Angus O'Loughlin sits down with Amy Evans—a dynamic 26-year-old and owner of 'Little Black Dress Digital' marketing agency, living with a rare genetic condition called Nemaline Rod Muscular Myopathy. Amy opens up about her journey growing up as a twin who has the same disability and the power of support systems. As well as the inclusive world of fashion, horse racing and what it's like to live in a day with Nemaline Myopathy. Amy also shares a confronting behind the curtain look of the critical impacts of COVID-19 when it came to healthcare access for those with disabilities.  "We are contributing members of our society that pay our taxes... why should someone like us not be prioritised..." Want to support Amy and her business/content? Instagram: https://www.instagram.com/amy_c_evans/ Little Black Dress Digital: https://lbddigital.com.au/ Watch the Full Episode with Captions Here: https://youtu.be/Fi4WhhHVDVM Grab our first merch release at our website Session in Progress.Recorded, edited and produced by Angus' Podcast Company: www.sessioninprogress.com.auSee omnystudio.com/listener for privacy information.