An Interview with Lucy: Ehlers Danlos Syndrome

Meet Lucy, a research psychologist from the UK living with Ehlers-Danlos syndrome (EDS), chronic migraine, and persistent pain that went undiagnosed for more than two decades.From painful periods and joint pain to migraines, digestive issues, and fatigue, Lucy spent years collecting diagnoses without anyone connecting the dots. Receiving an EDS diagnosis finally brought answers—but also a profound shift in how she understood herself and her future.In this thoughtful and honest conversation, Lucy shares what it means to live with chronic illness while building a meaningful life. We discuss grief, acceptance, pacing, the constant "pain noise" of living in an unpredictable body, and the deliberate choices she makes to prioritise what matters most.This is a powerful conversation about resilience, self-compassion, and learning to live well alongside chronic illness.We hope you enjoy.