Andrew Bannister - raising awareness of PVNH and rare brain diseases

Andrew Bannister was born with rare brain malfunctions, including Periventricular Nodular Heterotopia (PVNH), but these have not stopped him from achieving many things. Inspired by the story of Ella, whose mother organised to light up the Perth Bell Tower in 2018 after Ella died of PVNH, Andrew decided that he would organise to light up more locations to bring awareness to the condition, and later, of all rare diseases. In 2020, Andrew organised 35 landmarks in Australia and around the world to be illuminated for Rare Disease Day in February. He has already organised for 50 landmarks to be illuminated for Rare Disease Day 2021.See omnystudio.com/listener for privacy information.