Aoife’s Fight for Skyclarys Approval | Galway News

Aoife Quinn, a 23-year-old from Galway living with the rare, fatal genetic disease Friedreich’s Ataxia, is fighting for time as doctors predict she may not live past forty. Diagnosed at 18, her condition already impacts her mobility, speech, and heart — but she refuses to blame her parents, who unknowingly carried the gene. Now, Aoife is leading a desperate campaign to get the promising drug Skyclarys approved by Ireland’s HSE, urging the government to override cost concerns and act fast — because for her and 200 others, this treatment could mean the difference between slowing decline or losing everything. Listen in comfort:Get a discount on a Soli Pillow: http://solipillow.com/discount/dnn. Advertise on DNN:[email protected] This is an automated, high-level news summary based on public reporting.Report issues to [email protected]. View sources & latest updates:https://sources.thednn.ai/e58ab973587d8d80