Barb Hara Shares Her Journey as a Caregiver to Her Sister Jackie

Barb Hara found herself in the role of caregiver just last year when her sister Jackie was diagnosed with PH positive B cell ALL. Following a transplant, she just celebrated her first "birthday" in September of this year.As a caregiver to her older sister, Barb took the reigns and started taking notes - lots of them.  She tracked every doctor, every treatment, every day. This allowed her to stay on top of all developments and closely monitor Jackie's situation. Organization was key, as this allowed her to send several group text messages to different friends and family.Barb also talks of the importance of flexibility - situations often change, sometimes without warning. Her husband stepped up with "grandkid" duty when Barb had to stay with Jackie during her recovery.  And her other siblings did what they could, filling in as needed and her younger sister was her rock when Barb needed to vent.Barb found a great (constructive) way to bring family and friends together to help when she created a team for Henry Ford’s Game on Cancer and they all participated in the 2019 Detroit Marathon (5K). Jackie had just been released from the hospital from her stem cell transplant, so a friend stayed with her while the family went to the run. The information in this podcast should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. The listed resources are not intended to be endorsements.For more information, visit http://hfordh.convio.net/site/TR/Events/GameOnCancer?fr_id=1120&pg=entryJackie is doing well today, one year post transplant, and is looking forward to more birthdays, thanks in large part to her younger sister.For more from the National Bone Marrow Transplant Link, visit us online at nbmtlink.org or call us at 800-546-5268.This season of Marrow Masters is sponsored by the nbmtLINK, Incyte Corporation and The Leukemia & Lymphoma Society.nbmtLINK website: https://www.nbmtlink.org/The Leukemia & Lymphoma Society: https://www.lls.org/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment.  It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK.  Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.The Marrow Masters Podcast is produced by JAG Podcast Productions: https://jagpodcastproductions.com/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.