Be HD Aware, Live for Life Foundation

What this episode covers

2010 was the start for all involved with the foundation, Talks with MPS; Angela Constance, Fiona Hislop and then Scotland's First Minister; Alex Salmond to ask them to support our foundation so we could achieve our goals and let Scotland be HD / JHD AWARE.  The foundation was awarded charity status April 2011. 2016 Scotland first minister Nicola Sturgeon is well aware of the work the foundation carries out due to Annie MacKenzie having the opportunity to meet the FM had two event for cares of various conditions. Most SNP (Scottish nationalist political party) have at one stage support the be hd aware campaign. Including snp city of Glasgow councillors and west Lothian councillors the main aims:  •    Raise awareness for Huntington's Disease/ Juvenile Huntington's Disease •    The impact HD/JHD can have on the whole family, •    Help to improve care/ support for HD families throughout Scotland, through the means of hosting a variety of event's throughout Scotland.  main points: •    The importance of raising awareness for JHD/ HD within the community reduces stress for the person affected by JHD/ HD and his /her family. •    Awareness prevents the JHD/HD affected member of the family being accused of being drunk, the person with JHD /HD stops going out •    Awareness within the care system can helps put trained support / care in place before the family are emotionally stressed and unable to cope Events held to date: •    16 live music events in various counties throughout Scotland •    7 youth football events •    Talks with professionals We are the first registered Scottish charity ran by HD family members.

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