Before You Test

What this episode covers

Tune in to hear this very important show. There are so many things to think about before you take the step to be tested for Huntington's disease. Dr. Bonnie Hennig is coming on Help 4 HD Live! to talk about some of those things we need to think about.  Dr. Hennig is the Director at the UConn Health Huntington’s Disease Program.   She has over 30 years of experience as a clinical therapist and has worked with people who have HD and their families since October 1999.  Dr. Hennig provides counseling to people at-risk, people affected by HD and their family members including pre-symptomatic testing, crisis intervention, supportive counseling, couple and family therapy, continuing care needs, entitlements and benefits.  She initiated and co-facilitates an ongoing, monthly caregiver’s support group and provides in-services to health care professionals inConnecticut.  She has created a state-wide HD symposium which has been offered free to the public for five consecutive years. Dr. Hennig is nationally and internationally recognized as an expert in the field of talking to children about HD.  She has written a book called, “Talking to Kids About Huntington’s Disease: a book for people who know children with HD in their family”.  The book has been translated into five languages and she has lectured extensively on this topic as well as other HD related topics in the United States and abroad.

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