Betsy Miller & the lived and shared experience

On this podcast, I've explore developmental dysplasia of the hip from every angle: the science, the evolution of treatment, the lived experience, and how patients and families make sense of a diagnosis that can follow them across decades.Today’s episode is a wide-ranging conversation with Betsy Miller, author of The Parents’ Guide to Hip Dysplasia, (https://betsymillerbooks.weebly.com), a book she published nearly twenty years ago, around the same time the International Hip Dysplasia Institute was founded. Betsy wrote that book not as a physician, but as someone who had been treated for hip dysplasia as an infant and later realized how little practical, accessible information existed for parents facing a brace, a cast, or surgery. With a background in technical writing, she set out to create the resource she wished had existed.Although she did well for many years, she was later told she had residual dysplasia, something that came as a surprise. We discuss how hip dysplasia can remain silent for decades, why some people do not realize they have it, and how the field of hip preservation emerged in response to these late presentations.We also talk about how people get their information in 2026, whether books still matter, the challenges of nonprofit education, and what happens when hip preservation is no longer enough. Betsy ultimately underwent bilateral hip replacements and is now writing a new book, Hip Replacement at Any Age, aimed at younger patients who often feel alone in a space dominated by older adults.It is a thoughtful conversation about information, identity, and how a diagnosis in infancy can echo throughout a lifetime.